Autism, Life and Learning

Hi everyone, if you have been reading some of my blog posts you will know I don’t really like The National Autistic Society at all😡. I like that we can celebrate everyone is different on the spectrum, but with them or at least the ones allowed on social media don’t seem to like any labels that separate us or like most of the terms of us… Which okay I can understand but the puzzle sign (which is the sign for autism and Aspergers) they don’t like. The terms high functioning, low functioning, Asperger’s and some don’t like the term Autistic. Which are all silly, my official diagnosis is Asperger’s with High functioning autism. They would prefer a person with autism- which sorry I won’t use. This shows some people that there may be a cure for us and there just isn’t we are perfectly odd people. Anyway, they have come up with a very biased video on YouTube😖. Before anything is said in the comments, yes I am subscribed to them, I do this just so I know what other people are talking about ...

I had my PIP assessment on the 13 th I think it went well👍. As I walked in I twitched quite badly, I still have a bruise nearly a week later😔. The person who saw me was a qualified nurse, even they didn’t quite know what to do with me. Which sounds bad but through the Health and Social Care system only specialist really deal with autism. Also, Autism diagnosis are getting more common, but it doesn’t mean people with autism see more of doctors, nurses or other people through the health care system. We see the same people that we keep seeing because that is the best way of stopping the meltdown, either that or they have to bring in someone who knows about autism or is trained in special needs.  Anyway, back to the PIP😶. It only took around 30 minutes. My assessment for autism took 3 days, yes days😱😳. So… How does 30 minutes fill up 3 day’s worth of assessments? I am not too sure either. So, people genuinely think that you can cover completely someone’s autism in 30 min...

The day after I posted my last blog I got a letter from the people from PIP saying they want me to come in for an assessment. This is meant to be the last step if the person doesn't say that I need some help to be completely independent all the work will have been for nothing, although I know I can appeal, but it shouldn't come to that. So I have to show how bad my tics, my scratching and my anxiety are just so people understand. This is just annoying I have to set everything off and hurt my self just so someone can see. I think the assessment is around 30 mins to 1 hour.  So I have to handle a new place, a new environment, new people and I don't even know how people can handle me. I am so used to people thinking that if I tic too much that I am having a seizure of some kind. If I say something out of the blue like I'm a hamster or Pikachu.  People look at me oddly and I have to show all of this because someone doesn't believe you. I have enough of this just going ...

It's now the start of December. So the shops in town are full of people. Thats why I did all my shopping well before hand. I thought I would give a life update. So I am alive and still autistic. In our household we have decorated the house with Christmas decorations and put up pur tree.  I am planning a fundraser at the moment. It should be fun. So with Christmas looming I am already looking at next year. It seems so far away but It is only less then a month away really. I have sent off my PIP form. So that will be another 6-8 weeks to wait. Yep I will have to wait another month and half to get an asscessment. Then wait the same time again to see if I qualify for it. I think I may forget about the claim before it even happens at this rate.  I thought I would do another update because I keep saying things that are wrong with the world around autistics. So I thought I would do this to say things away from all that.  Also it is completely different from the ones from last we...